December 19, 2013
I cannot believe I started this page nearly four years ago, that blows my mind. Kids are now 2 1/2 (Poppy), 5 1/2 (Ben) and 11 (Avery). We continue to roll along as always but were fortunate enough to purchase a house in November which has meant only good things for our little family. Ben now has laminate floors to wheel around on in his walker and everyone has their own “space” to retreat to when we need a break. While we still experience some “downs” our lives are bright and happy and full of love.
Welcome to our family page!
Our family consists of myself, my husband Francois, my step-daughter Avery (8yrs), our son Benjamin (2 yrs) and Poppy – born March 19 of this year.
In December 2009, our lives changed forever as Benjamin was diagnosed with a rare neurological disorder called Ponticerebellar Hypoplasia Type 3 (PCH3). Ben was born with an under developed cerebellum and brain stem which has resulted in severe developmental delay (details to be included in this blog).
Ben was born on August 13, 2008 and this is his story – along with the stories of those who surround him with love, care and protection.