All about the Busques

December 19, 2013

Updated Busques!

I cannot believe I started this page nearly four years ago, that blows my mind.  Kids are now 2 1/2 (Poppy), 5 1/2 (Ben) and 11 (Avery).  We continue to roll along as always but were fortunate enough to purchase a house in November which has meant only good things for our little family.  Ben now has laminate floors to wheel around on in his walker and everyone has their own “space” to retreat to when we need a break.  While we still experience some “downs” our lives are bright and happy and full of love. 

Welcome to our family page!

Our family consists of myself, my husband Francois, my step-daughter Avery (8yrs), our son Benjamin (2 yrs) and Poppy – born March 19 of this year.

In December 2009, our lives changed forever as Benjamin was diagnosed with a rare neurological disorder called Ponticerebellar Hypoplasia Type 3 (PCH3).  Ben was born with an under developed cerebellum and brain stem which has resulted in severe developmental delay (details to be included in this blog).

Ben was born on August 13, 2008 and this is his story – along with the stories of those who surround him with love, care and protection.

2 thoughts on “All about the Busques”

  1. like your Blog, nice to be informed, and to see how things are changing in all your lives! Special hugs to the “bug”..xoxoxox

  2. Hi,
    My name is Sonia Sheppard and I live in Canberra, Australia. We have three boys, two of the boys have Pontocerebellar Hypoplasia type 2 and one of our boys with the condition passed away in 2007. I just wanted to touch base and compliment you on your beautiful website “Being Benjamin”. What a beautiful tribute to your family and in particular your son Ben. I hope you dont mind but I have put a link to your website on our website under the Stories category. http://www.codysheppard.com/
    Sonia Sheppard

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One of Five. Life with an anomaly.

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