Surprising? HA! I doubt that – to read that I challenge yet another word associated with Ben’s diagnosis and life journey. This challenge isn’t like my internally brewing frustration for the use of “retarded” but instead a question of why a word is used when referring to my son (or your son or you daughter).
The word is SEVERELY
- to an undesirably great or intense degree. “our business has been severely affected by the slowdown”
- strictly or harshly. “the culprits will be severely punished”
Most of those words do not apply to Ben’s condition.
Undesirable presents as choice. He condition is undesirable? Well duh. Can we change it? Nope.
Strictly or harshly? Strictly implies structure. HA.
Harshly. Not at all. Neither life nor condition are harsh for Ben. Maybe on the rest of us but we’re not talking about “us” – it’s about Ben.
Yes, maybe intense degree applies. 1/6.25 billion. That’s intense. 11% of a cerebellum. Also intense.
But can anyone actually tell me that when they hear the word “severely” they’re considering the intensity of a condition and not the effects of it?
I would prefer the word SIGNIFICANT to be used.
sufficiently great or important to be worthy of attention; noteworthy. “a significant increase in sales”
having a particular meaning; indicative of something. “in times of stress her dreams seemed to her especially significant”
Sufficiently great or important to be worthy of attention. Yes the condition is and yes, Ben is.
Indicative of something? Of course; significant developmental delays? For sure.
Severe creates a shadow of negativity over Ben’s life and over his diagnosis; it doesn’t have to be looked at it that way.
Ben’s life and world is far from harsh – it’s bright, fun, happy and centered around him.
That’s of particular meaning if you ask me.