Tag Archives: space

A long time between…

I think the timeline between posts on this blog are so distant because Ben is doing so well.  I’m afraid to say it out loud as it tends to jinx his progress.

Two weeks ago, Francois and I (somewhat simultaneously) decided that it was time that Ben have his own room again.  He hasn’t had his own space since he was an infant as from birth until the moment we got overnight funding, he slept in our room.   And often on my chest or in my arms on the couch.  Now that we have two lovely nurses that accommodate his sleeping pattern (also known as “without a sleeping pattern”) – it’s time to give him that space back.

Practically overnight, we cleared out our extra room that we had been using for storage, swapped beds with Avery so we could use her day bed in his room, purchased furniture, decorations and voila! After placing his personalized “B” from his Ma Tante Chantal outside his room door, Ben had a bedroom.  He had.. HAS a space of his own.

Overwhelming but exciting!  Best part – he laughs when we take him down there now; like he knows it’s his.  I could cry just thinking about it.  Such a milestone moment for our family!

Ben's New Room 10440978_10154188519885697_5477989707695855068_n